Home / Projects/Reports / Informed Consent and Confidentiality

Informed Consent and Confidentiality

Informed Consent

Informed ConsentInformed consent is considered as the cornerstone of the protection of human research subject. Informed consent also implies a person’s knowing consent without undue impelling or any component of force, duress, fraud or any related forms of constraints or intimidation. Adequate information must be exhibited (in justifiable language) so that the potential subject can make an informed judgment more about participation. This information can be associated with a variety of shapes. It can be given to the potential member as: a report, or document which might possibly require a signature; a script which is read to the member preceding continuing with a phone review; a passage to be read before finishing an online survey. (“UNCC”)

Human subjects can be the most complex in relation to some ethical issues which require cautious consideration and thought with respect to both researchers and research members. Prospective members ought to dependably be given satisfactory information on both the conceivable dangers and the potential advantages of their involvements to permit them to make informed decisions about regardless of whether to take an interest in the research. An important aspect of informed consent is related to website usage, particularly social networks. The dilemma behind this is its complex ethics. This is a critical aspect understood by psychologists and counselors, which they try to transfer to their professional online behaviors. (Harris et al, 2014)


Confidentiality, is an absolute value and the term used to describe the desires of control over the dissemination of information about a person. (Stiles & Petrila, 2011) Confidentiality also refers to the process of treating information that an individual has uncovered in a relationship of trust and with the desire that it won’t be revealed to others without taking consent in ways that are not consistent with the understanding of the first disclosure. Confidentiality focuses on identifiable data, an extension of privacy, and also an agreement about maintenance as well as those who are entitled to access identifiable data. (“UCI, 2014”) Basically, confidentiality is specifically for the data. Confidentiality is basically appreciated as a major principle in research works.

Confidentiality is embedded as a moral guideline related to the code of research ethics which is essentially recognized by the Nationa; Bioethics Advisory Commission. (Stiles & Petrila, 2011) Confidentiality is one important principle that is prevalent in the health care sector, most especially applicable to the Hippocratic oath. The safety of secrets as specified by the Hippocratic oath still holds firmly, regardless of its translations. Confidentiality is very important in research and had been given strong confirmation and promotion by many other federal research regulations and guidance documents, as well as (Stiles & Petrila, 2011)

Comparing the Relationship of Informed Consent and Confidentiality

Confidentiality is a process that involves ethical concern. The principal purpose is to secure a person’s right to privacy by guaranteeing that matters revealed to an expert not be handed-off to others without the informed consent of the customer. Talking about confidentiality also implies that the therapists likewise would like to empower appropriate communication.

In informed consent, a time came when appointing students to uncommon programs was done matter-of-factly. Most experts conceives a believe in their minds that they knew who required help and what help was required. It was a generally simple matter to inform those included, that an issue existed and what was to be finished. Developing awareness of rights and of the conceivably harmful impacts of treatment prompted safeguards. Presently, consent is not taken with levity. Many parents and students have ended up as prominent considerations in planning, screening, diagnosis, and placement practices in the schools. Many related parents and child advocates have insisted that it is necessary that parents are in involved in any jurisdiction that might have a valid effect based on the course of a child’s life. Therefore, the primary purpose of informed consent is to ensure that permission and participation are ensured by the parties involved before any decisions can be made.

Neither informed consent nor confidentiality, however, is total rights, particularly on account of minors. There are key special cases which could also mean fundamental exceptions, some involve ethical considerations and some involves legalities. Privileged communication is a lawful idea. It addresses legitimate rights shielding clients from having their divergences to specific experts uncovered during lawful procedures without their informed consent. Legitimate determinations with respect to who is the client (e.g., whether minors or their parents hold the “benefit”) and restrictions on customers’ rights to advantaged communication are the bases for lawful special cases to looking after classification.

Implications if Informed Consent and Confidentiality are not Followed

Different countries are specific to different implications with respect to the non-adherence of informed consent and confidentiality. The duty of confidentiality and its implications are embedded in the Parliamentary Act based on case law. The laws identifying with contracts may become possibly the most important factor. In the case that an agreement proclamation of ascension has been made concerning the degree of the privacy to be stood to the supplier of secret data, this may constitute an agreement. A duty of confidentiality can likewise emerge without an explicit statement of this kind. It might be set up in two circumstances: when confidential information is gone, in certain, to the confidant (the recipient of the data); and when it has been supplied in circumstances in which the associate may sensibly assume it to be private. However, when there is a proper  negotiation of the confidentiality of any information that is not required to be disclosed, and a breach of confidentiality occurs, the implications are based on the consequences as stated Parliamentary acts based on the law.

Based on research, participants involved in an informed consent are liable to the responsibility of understanding the meaning of the research and a detail explanation as well as how it would be disseminated. The participants involved must be in an agreement to retain a right to  informed consent should understand the extent to maintain their confidentiality and also be aware of the potential uses and risk the data may be put incase it is spilled. Also, they should be able to remind one another that they can always re-negotiate consent. However, participants can be in a state of dispute, consent alone may not absolve the responsibility of participants to manage the likely consequences that they may face if any actions were taken. (Louise et al, 2000)

Processes to Ensure Clients Understand Confidentiality and Informed Consent Policy

The basic processes entailed in ensuring clients understand confidentiality and informed consent involves educating the clients on all the policies involved. They must understand all the state and federal laws that covers confidentiality and informed consent. Providing all the necessary document related to this will help clients understand these processes effectively.



Confidentiality and Informed Consent: Issues for Consideration in the Preservation of and Provision of Access to Qualitative Data Archives | Corti | Forum Qualitative Sozialforschung / Forum: Qualitative Social Research. (n.d.). Retrieved October 27,   2015, from http://www.qualitative-research.net/index.php/fqs/article/view/1024/2207

Harris, S., Robinson, K., & Sharon, E. (2014). Social networking and professional ethics: Client searches, informed consent, and disclosure. Milwaukee: WI.

Informed Consent. (2015). Retrieved October 27, 2015, from http://research.uncc.edu/departments/office-research-compliance-orc/human-subjects/informed-consent

Informed Consent. (2015). Retrieved October 27, 2015, from https://www.utc.edu/research-     integrity/institutional-review-board/informedconsent/

Informed Consent & Confidentiality. (2011, October 16). Retrieved October 27, 2015, from http://www.qcc.edu/services/counseling-services/informed-consent-confidentiality

Protecting Your Privacy: Understanding Confidentiality. (2015). Retrieved October 27, 2015, from http://www.apa.org/helpcenter/confidentiality.aspx

Privacy and Confidentiality. (2014). Retrieved October 27, 2015, from http://www.research.uci.edu/compliance/human-research-protections/researchers/privacy-and-confidentiality.html

http://www.qualitative-research.net/index.php/fqs/article/view/1024/2207 NAADAC. (2013). Retrieved October 27, 2015, from http://www.naadac.org/code-of-ethics Stiles, P., & Petrila, J. (2011). Research and confidentiality: Legal issues and risk management    strategies. Florida: American Psychological Association.